Hi Everyone, Thanks for letting me blog about women with bleeding disorders. I spent my entire life bleeding. When my teeth were pulled out, I was taken back to the dentist numerous times to have them packed. When my tonsils came out, the same thing happened only I remember the doctor stuck a hard pack into my throat to get it to try to clot, and then pulled the gauze out. It was horrible. And guess what? It didn't hold. I still bled, then my periods. They went on and on. I lost track of the number of D and C's I had. My uterus was taken at 28 because I was bleeding so much. The doctor should have called in a hematologist, but instead just did surgery on me. Oh well. I wasn't the first. At the same time I received my Ph.D. in Sociology in 1996, I began looking for research on women with bleeding disorders and found there was hardly anything. Did we not exist? Or were doctors not interested in women? I was interested in the quality of life of women with bleeding disorders. What will be coming after this post is some of my findings and I will continue to blog. Feel free to ask me for specific things you want me to talk about as well. More to come. Diane
Sunday, September 11, 2011
Let Me Introduce Myself
Hi Everyone, Thanks for letting me blog about women with bleeding disorders. I spent my entire life bleeding. When my teeth were pulled out, I was taken back to the dentist numerous times to have them packed. When my tonsils came out, the same thing happened only I remember the doctor stuck a hard pack into my throat to get it to try to clot, and then pulled the gauze out. It was horrible. And guess what? It didn't hold. I still bled, then my periods. They went on and on. I lost track of the number of D and C's I had. My uterus was taken at 28 because I was bleeding so much. The doctor should have called in a hematologist, but instead just did surgery on me. Oh well. I wasn't the first. At the same time I received my Ph.D. in Sociology in 1996, I began looking for research on women with bleeding disorders and found there was hardly anything. Did we not exist? Or were doctors not interested in women? I was interested in the quality of life of women with bleeding disorders. What will be coming after this post is some of my findings and I will continue to blog. Feel free to ask me for specific things you want me to talk about as well. More to come. Diane
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Diane, I am wondering how we change the paradigm that "women don't have bleeding disorders". Do you think it needs to be all the way back to the training the doctors, nurses, technicians receive in their medical training? If so, how do we get them interested in updating their curriculum? It seems like they need a credible source to bring this forward. Can you help us create that framework?
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