Getting diagnosed is difficult for women. At least it was for me. After bleeding for so many years and so many D and C’s to stop the bleeding (which we now know will not). Actually how can scraping my uterus stop me from bleeding? What’s up with that? I went in as an outpatient one day to have both another D and C and a laparoscope to see why I was bleeding. That night every time I stood up, I passed out and fell flat on my face. In the middle of the night my husband at the time took me to the hospital and after a “complete” exam I was given pain killers and told to go home. I wasn’t OK. By the next morning, my husband insisted my doctor see me because my stomach was huge and hard and I was still passing out. He met us; my stomach was filled with blood because I had been hemorrhaging all night and I was given blood into both arms and rushed into surgery where they took out my uterus and ovaries. You might not be surprised to find out that after surgery I hemorrhaged from the surgical scar all the way to my chest around to the back of me. Was a hematologist called in? No. Of course not. I am a woman. He didn’t get called in for another three weeks. Are any of you ladies surprised? What are your experiences?
Monday, September 12, 2011
A Very Bad Bleed
Getting diagnosed is difficult for women. At least it was for me. After bleeding for so many years and so many D and C’s to stop the bleeding (which we now know will not). Actually how can scraping my uterus stop me from bleeding? What’s up with that? I went in as an outpatient one day to have both another D and C and a laparoscope to see why I was bleeding. That night every time I stood up, I passed out and fell flat on my face. In the middle of the night my husband at the time took me to the hospital and after a “complete” exam I was given pain killers and told to go home. I wasn’t OK. By the next morning, my husband insisted my doctor see me because my stomach was huge and hard and I was still passing out. He met us; my stomach was filled with blood because I had been hemorrhaging all night and I was given blood into both arms and rushed into surgery where they took out my uterus and ovaries. You might not be surprised to find out that after surgery I hemorrhaged from the surgical scar all the way to my chest around to the back of me. Was a hematologist called in? No. Of course not. I am a woman. He didn’t get called in for another three weeks. Are any of you ladies surprised? What are your experiences?
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Diane, As the stepmom of two girls with severe factor V deficiency, both have had more medical procedures and disasters than I care to write about here. Hence, I wrote a book called Pooling Blood (iUniverse 2010). Our only saving grace throughout was our hemophilia care center because they specialize in bleeding disorders and they really stepped in to education the medical professionals who just hardly seem to get it. The regular hematologists don't get it. They treat cancer patients. It's those at the hemophilia treatment centers that get it. I am glad you survived to help us document the history that needs to be written down and shared. Please don't give up writing your history.
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